A giggle from Zane!

I spent 2 hours today playing with Zane in his bed in high care. They have moved him into an isolation room because apparently he has picked up a virus which is contagious to infants.(lucky us) this means I need to keep scrubbing and cleaning my hands every time I enter the room or leave it.

Well zane was sitting up by himself and bashing a rattle and some plastic rings and toys around.
Again I am sorry no photos yet the camera is still at the hospital with Philippa who has been the most awesome Mom ever. She has never left Zanes side unless I was there and she has been the most caring and amazing wife. I don’t know how I could ever handle anything like this without her. I love you angel!
Hopefully that little serenade will get me more than a big kiss when the whole family is home 🙂

Depending on how Zane is tomorrow the Doc says he may be able to come home and take some oral antibiotics with us.

We went to the scanning room today to see how the repair looked using ultrasound. The doc says all looks well and Zane should live a long and healthy life without (touches wood) any further operations.

We were so happy to hear that. The doc also checked to see if there was any liquid around the heart that might need attention but luckily nothing was detected.

So with a huge sigh of relief I would just like to say thanks to everyone that sent flowers,wrote in a card, gifts,fluffy toys and sent wished via SMS , email or Via phone.

Although I do not profess to be very religious, it is at times like these when every time someone says a nice prayer or blessing for Zane that we always greatly appreciate every single thought that has been said to God and even those silent prayers that people make at any time for him. I think that has been the greatest piece of encouragement any parent could ever want to hear.

The Christ church up the road from us where we got the twins baptized/christened has been doing weekly prayers for Zane through-out the congregation and have been contacting Philippa regularly to get status reports and we cannot thank the congregation enough for those prayers.
Thank you , Thank you thank you.

Zainab, another mother of twins, who is of the Muslim faith has been keeping Zane in their family prayers, which makes us very grateful.

My mother who has been in Clearwater Florida in the states has devoted her life to Scientology and I know that Scientology is what I see as a spiritual religion may or may not have some way in which they deal with things like this. I know my mother has been calling Reguly. I only wish I had been able to take more of the calls that have been coming through to me. Mom I know it has been on your mind a lot too and I appreciate all the words of advice on caring for Zane during his time in the hospital. I have tired my best to take those words of advice and put them to practice.

Ok, I know, I know I am rambling a bit about this. I just felt I needed to thank those people who have given every bit of effort to helping us through this trying time.

*swallows lump in throat*

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Zane is out of ICU!

Well I got to the hospital this morning and went down to the ICU for Visiting hours and only to find my Zane had been moved out of ICU and into Peads High Care a few floors up.

He was awake and moving his arms around and being a little verbal, still a little subdued but thats only understandable I just hope that he gets his baby groove back when he gets out of the hospital.

One thing to point out which I am not sure why they do it. the pulled out his IV from his wrist ( we all know hwo small a babies wrist is) And then went ahead and made a new IV in his foot! The buggers could have just left the hand one in!
Having to make a baby go through that pain doesn’t sound fair. I guess when you look at it from a babies point of view would you rather be able to wave your hands around or wave your feet around?

They have taken the jugular feed from his neck out, which is great no more constant feed of drugs.

Philippa was giving him a good feed before I left and he seemed to be keeping it down (holds thumbs)
Hopefully only a few days in High care then we will try take him home.

Philippa will be in high care with Zane 99% of the time and when she comes home I will try spend as much time with him.

I am sorry I did not take my camera cable with me this morning, so no photos but hopefully tonight I will have a few photos and movies to upload.

Thanks youtube for hosting our vids!
and all the support from friends and friends of friends for Zanes health wishes.

– Brennan

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YAY Zane is off the respirator!

We arrived at the hospital this morning, for the morning visit expecting to comfort an unconscious boy only to find that he had just been extubated (breathing apparatus removed from nose) His little eyes were half open. So drowsy and very groggy but none the less awake and slightly coherent.

He was reacting to us! Just to see your little boy in such a condition is heart breaking. I do not wish this experience on any one not even my worst enemy( if you are reading please consider yourself lucky 🙂 )

Well, the weight that gets lifted off your shoulders every time Zane reaches a new milestone in recovery is unbelievable.

As soon as all his pipes are out of his body then he can be moved out of ICU into High care. We don’t want to rush it, as in ICU you have a sister looking after him 24 hours a day but in High care they just keep an eye on you, which is why Philippa and I will be taking shifts at night with Zane. Thanks Granny Lyn for helping out.

Here is a clip I took this morning of Zane.

Then I ran some errands in between morning visit and 3pm visit and when we came back at 3 he was a lot more lively and reactive to our presence.

We are ever so happy about today’s events and eagerly await his transfer to high care where we can be with him permanently.

– Brennan

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Day 2 after the Operation


It’s been 55 hours since the operation. Zane is still on a respirator.
We were hoping he would come off the respirator today but he appeared to need another pipe put in him to drain fluid between his rib cage and his organs.

He is on a cocktail of about 7 different drugs ranging from adrenalin for his heart to dormicom for sedation and I think I saw some morphine on the list. I will post a photo of all the drugs being pumped into him on the Gallery website.

So right now there are 4 tubes coming out of his body getting rid of excess fluid. He has an IV on his right wrist feeding him nutrients. He has a rectal thermometer, he has a catheter, he has a thick cable going into his jugular feeding him the 7 drug cocktail.
He has sensors all over his body checking heart, respiration, breathing and heart chamber pressures.

They have a spirit level next to his bed in order to make sure his heart is at the same level as the pressure monitor in order to get an accurate pressure reading of each chamber of the heart.

I know the surgeon is one of the best in the country however he is the worst people person for parents who don’t know too much about this.
His answers to questions are usually one word, maybe 2 and then disappear to help another patient.

We do appreciate that he did such a good job on Zane but I would also appreciate a little compassion and explanation. I guess I will go to the Pediatric Cardiologist who dealt with us Dr Raymond dansky.

While we were watching Zane’s Heart rate went up to 177 bpm and the light on the monitor started to flash and alarm. I guess it makes you nervous when these things happen.

OK Philippa has just called for a quick bath with Trenton.

– out

–appendage–

I am just adding this video from day 2 to this post
A status of Day 2:

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At 10:45 this morning while we were biting our nails in the waiting room a nurse just came in and gave us the all clear Zanes operation was a success they were just taking him off the bypass machine. We will probably be able to see him in about 1.5 hours. He will however be heavily sedated and non responsive at least the HUGE weight is off our shoulders of anything going wrong.

The emotional stress that one goes through for this is not very enjoyable.

I got to the hospital this morning at 7am, I got to see a groggy pre-med Zane (very cute in this phase) getting ready for the operation. We found out his blood type is B positive. I wonder what Trenton’s blood type is?

The tears were not something that I tried to pull back. They flowed, for both of us.

We have taken lots of photos before he went in and just as he was put under I managed to sneak in a video of how they were doing it.

They are very nervous about camera’s in the operating room because I guess if there is a malpractice issue you have proof.

I got some last minute photos and now we wait for the post op photos.
They may be a bit traumatic but I figured one day he would like to know what happened and why he has this scar on his chest. I guess this blog will serve as a record of events and why it all happened.

Anyhow, not long now and we can see him. Granny is bringing Trenton to come and visit shortly which will be nice, unfortunately they do not allow him to come into ICU. . . Understandable.

During the morning to keep our mind off any issues we took a walk around builders warehouse to try plan our new house. The distraction did not work too well as we kept wondering how things were going.

Ok enough banter I need to give some attention to Philippa now.

*wave*

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Morning of the op

Maybe I am posting too many times lately but I think it is necessary.

Got to sleep round midnight and up at 5am, at 5:30 I got a call from Philippa saying they are bathing Zane in betadine and he has been up for a while now.
Philippa’s phone has died so she called from a pay-phone.

Trenton never stirred at all the entire night, I have just given him a small bottle and popped some baby einstein on for him.

I am ready to go and will ask our Nanny Beuaty to come in a spot earlier so I can get my ass to the hospital.

I have camera laptop, ipod, some magazines, a spare battery for phils phone and a wirelsss modem so I can do some blogging and uploading of photos at the hospital.

Time to change Trent and get my ass into gear to try miss any form of rush hour.

– Bren

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